Entries by brooke

2020 Report, Radon and more!

01/01/2021

Dear Friend of A Breath of Hope Lung Foundation,

Thank you for your partnership, your support and your ongoing commitment to our vision to defeat lung cancer. Whether you donated in 2020, volunteered to bring groceries to someone living with lung cancer, attended a meeting or event, or simply lifted us up in your thoughts or prayers, we appreciate you and we never forget why you are here and how this disease has hurt your family.

2020 was 2020, right? As we begin 2021, we hope for easier days ahead, and celebrate the successes that happened despite this pandemic. Our research program was not affected by Covid-19 and we continue to announce new awards to make progress in fighting lung cancer. Visit our website to read about the research we are currently funding – www.abreathofhope.org.

While our patient driving program was furloughed last March, our support groups, free grocery and patient education programs grew. Have you seen the new immunotherapy module at youandlungcancer.com? Coming soon on that site: Comprehensive Biomarker Testing with a focus on underserved community access and education!

With vaccinations happening and easier days on the horizon, we begin our planning for the reopening of the driving program in March and are hopeful that our Golf Classic and 5K will be physical events in June and August. We know how much it means to you to come together as a community and we will do all we can to make that happen in 2021, with your safety at the forefront of our planning.

We are stronger together and as we start this new year, we simply want to express our gratitude for your support and encouragement.

On behalf of our board and staff, we wish you a happy new year and hope to see you soon!

Warm regards,

Nancy

Nancy Torrison
Executive Director

Remember to Test Radon Levels Annually

A new year always offers a unique opportunity to check-in and make sure we are making safe and healthy choices for ourselves and our families. Across the nation, January is Radon Awareness Month and the perfect time to test your home for radon gas.

Radon is an odorless, colorless and tasteless gas that occurs naturally in Minnesota soils and is the leading cause of lung cancer among non-smokers. Fortunately, the risk is largely preventable through radon testing and mitigation. Tests can be ordered at the link below or purchased at your local hardware store. Testing is inexpensive and usually completed within 2-5 days.

“Radon testing and mitigation increased from 2010-15, and it has held steady in the last five years,” said Dan Tranter, supervisor of the Indoor Air Program at the Minnesota Department of Health (MDH). “Unfortunately, many people are still being exposed to high levels of radioactive radon who don’t know it. With more people working and schooling from home, it’s especially important now to test your home.” 

You can purchase a low-cost test kit and learn more about radon risks, testing, mitigation, and licensure in Minnesota here. Or call the MDH Indoor Air Unit at 651-201-4601 or 1-800-798-9050.

A Breath of Hope’s very own Bonnie Mueller teamed up with our friends at the Minnesota Department of Health to create this educational video. Check it out:

Save our 2021 Event Dates

We are hoping that 2021 will be the year that we get to see all of our wonderful supporters again. Please add these dates to your calendar – additonal information available by clicking on each image.

 

 Want to get these newsletters in your inbox? Read more Read more

Patient-Led Chat Rooms Available by Mutation 

EGFR: Ivy Elkins

Currently NED, Ivy Elkins was diagnosed in December 2013 with EGFR+ stage IV lung cancer. She is one of the co-founders of the EGFR Resisters, a patient-driven initiative to improve treatments for
EGFR+ lung cancer. She has served as a six-time consumer reviewer for the DOD Lung Cancer Research Program, twice completed the AACR Scientist-Survivor program and taught three times as advocate faculty at the ASCO/AACR Methods in Clinical Cancer Research Workshop. Ivy also serves on the Yale SPORE, the Patient Advocacy committee for IASLC, the UChicago Medicine Community External Advisory Committee, and writes for lungcancer.net.

ALK: Gina Hollenbeck, RN, BSN:

Gina is a stage IV lung cancer survivor. She is married and has two sons (12 and 17). She is the president of ALK Positive Incorporated which is a patient driven organization dedicated to improving the quality of life and life expectancy of ALK-positive patients worldwide.

ALK Positive has raised over $2M since 2017.  The patient led group has funded 7 research projects with LUNGevity and GO2 to benefit the ALK positive community. Patients and caregivers work with key opinion leaders in the ALK space to choose research that has the most impact on ALK-positive survivors.

Gina believes that comprehensive biomarker testing for all lung cancer patients, early detection, easier access to clinical trials, and effective treatments are vital to those suffering from lung cancer.”

ROS1: Lysa Buonanno & Lisa Goldman

KRAS: TBD