March 2020 Newsletter

03/06/2020


Supporting families in SW Florida

Nearly 300 people came together last weekend to raise their collective voice at the 4th annual A Breath of Hope Lung Run/Walk SW Florida. It was a perfect day and a great opportunity to introduce the ABOH Ambassador Program that will bring needed services and support to lung cancer survivors living in SW Florida. In partnership with Lee Health, ABOH volunteers will provide transportation and companionship visits starting this May.

The ABOH Ambassador Program is made up of volunteers who have been personally touched by cancer and want to volunteer their time to help others cope with lung cancer. Some are survivors, some have lost loved ones. All Ambassadors have experienced the pain and fear evoked by a cancer diagnosis and are willing to volunteer their time to others.

If you or someone you know would make a great ambassador, please contact us for an application.


Faces of Lung Cancer: Chelsi

Research is of critical importance to lung cancer patients like Chelsi Terwey. Without an increase of funding to this research field, scientists cannot fully explore the ideas they have for developing new treatments and new ways to prevent a poor response to treatment, as well as improved methods to detect lung cancer early when it is easier to treat.

The next video in the Faces of Lung Cancer video series has just been released to help raise awareness and promote change for families like Chelsi’s. Our beautiful friend is currently in the hospital and fighting for her life. Her family asks for prayers.


Biomarker Testing

According to the National Center for Biotechnology Information, it is of critical importance that newly diagnosed NSCLC patients quickly receive comprehensive biomarker testing to determine the treatment most likely to succeed in defeating their cancer. Recent studies show that although a growing list of essential genomic/immune-based biomarkers are linked to approved NSCLC therapies worldwide, few reports have shown the evolution of predictive biomarker assessment in routine clinical practice.

To help patients understand and advocate for biomarker testing and precision medicine, A Breath of Hope looks forward to introducing a new animated patient module focused on biomarker testing later this year. This patient education resource will become part of our current, highly utilized Animated Guide to Lung Cancer.

This new ‘Biomarker’ module will educate U.S. lung cancer patients (and world communities) about the importance of biomarker testing and precision medicine. The problem barrier is many patients don’t get offered this test, don’t accept it, or don’t wait for results before starting treatment. While we do see this testing becoming an essential or even mandatory part of lung cancer diagnoses in the future, right now, biomarker testing is not implemented sufficiently, and we want to do everything we can to empower patients. Stay tuned…


Upcoming Events:

Ladies! In two weeks we gather for the 8th annual Women’s Wellness Tea! With the Bags, Bling & Beauty Silent Auction, breakfast beverages (Mimosa anyone?), a delicious brunch at the lovely and always classy Wayzata Country Club, a fashion show that features cancer survivors, Laughter Meditation and educational breakout sessions focused on helping you be your healthiest you, this is an event you shouldn’t miss. Register soon – our tables are filling!


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