2021 Fall Screening Meeting Registration


Patient-Led Chat Rooms Available by Mutation 

EGFR: Ivy Elkins

Currently NED, Ivy Elkins was diagnosed in December 2013 with EGFR+ stage IV lung cancer. She is one of the co-founders of the EGFR Resisters, a patient-driven initiative to improve treatments for
EGFR+ lung cancer. She has served as a six-time consumer reviewer for the DOD Lung Cancer Research Program, twice completed the AACR Scientist-Survivor program and taught three times as advocate faculty at the ASCO/AACR Methods in Clinical Cancer Research Workshop. Ivy also serves on the Yale SPORE, the Patient Advocacy committee for IASLC, the UChicago Medicine Community External Advisory Committee, and writes for lungcancer.net.

ALK: Gina Hollenbeck, RN, BSN:

Gina is a stage IV lung cancer survivor. She is married and has two sons (12 and 17). She is the president of ALK Positive Incorporated which is a patient driven organization dedicated to improving the quality of life and life expectancy of ALK-positive patients worldwide.

ALK Positive has raised over $2M since 2017.  The patient led group has funded 7 research projects with LUNGevity and GO2 to benefit the ALK positive community. Patients and caregivers work with key opinion leaders in the ALK space to choose research that has the most impact on ALK-positive survivors.

Gina believes that comprehensive biomarker testing for all lung cancer patients, early detection, easier access to clinical trials, and effective treatments are vital to those suffering from lung cancer.”

ROS1: Lysa Buonanno & Lisa Goldman

KRAS: TBD

Expert Panel: Q&A with Doctors, Nurses, and Patients

Manish Patel, OD:

Dr. Patel is the Associate Professor of Medicine and a medical oncologist at the University of Minnesota specializing in the care of patients with lung cancer. He is engaged in lung cancer research trying to develop novel therapies in his laboratory as well as in early phase clinical trials to be applied to lung cancer patients.

Merryn Jolkovsky, MD:

After practicing Nephrology for 18 years, Merryn refocused her practice to improve the care of patients facing serious illness and reaching the end of life. She designed and successfully implemented a Palliative Care program within CentraCare, with the goal of improving care for patients with serious illness. Through collaboration with the ICU to integrate Palliative Care, and with the Home Care team to create a Home Care Palliative option. Jolkovsky brought Schwartz Center Rounds to the hospital, and led the collaboration with The Convenings, an Emmy-award winning public awareness campaign for health care directives. Merryn also founded a NPO, Light the Legacy, to promote health care directives in her community and currently serves as chair of the Board of Directors.

Naomi Fujioka, MD:

Dr. Fujioka is a medical oncologist at the University of Minnesota specializing in thoracic and head/neck malignancies. She is involved in clinical trials. Her research interest is in food-based chemoprevention of tobacco-related lung cancer.

Jonathan Hovda, MD: 

Dr. Jonathan Hovda graduated from Medical School at the University of Minnesota, where he simultaneously also received a Master of Business Administration degree from the Carlson School of Management. He completed his residency in Internal Medicine at Abbott Northwestern Hospital in Minneapolis and fellowships in Pulmonary/Critical Care Medicine and Interventional Pulmonology at Wake Forest University in Winston-Salem, NC. Dr. Hovda has special interests in lung cancer and advanced bronchoscopy, including endobronchial ultrasound and electromagnetic navigation bronchoscopy. He is board-certified in Internal Medicine, Pulmonary Disease and Critical Care Medicine. He practices both inpatient and outpatient Pulmonary Medicine, and sees patients at our Minneapolis, Plymouth, Burnsville, and Fridley offices.

Shirley Kern, APRN, CNS, AOCN:

Shirley Kern is an Oncology Clinical Nurse Specialist at North Memorial Health Hospital. She has over 25 years of experience in oncology and is active with the Oncology Nursing Society as well as a founding board member of the Upper Midwest Oncology Education Network. Shirley works with a multidisciplinary team at North Memorial to facilitate patient care and navigate patients through their treatments. She leads a monthly Lung Cancer Support Group at North Memorial. She has been an oncology nurse for her entire career and finds it incredibly rewarding.

Midwest Lung Cancer Patient Summit Presentation:

Q&A with Doctors, Nurses, and Patients – Manish Patel, OD, University of Minnesota; Merryn Jolkovsky, MD, Centra Care, St. Cloud, MN; Naomi Fujioka, MD, University of Minnesota; Jonathan Hovda, MD Minnesota Lung Center; Shirley Kern, APRN, CNS, AOCN North Memorial Health

Clinical Trials: Promising Treatments Being Developed Today

Joseph Leach, MD:

As senior vice president and chief medical officer (CMO) at Prime Therapeutics, Joseph Leach, M.D., is responsible for providing clinical leadership and expertise to the enterprise, informing and influencing internal and external stakeholders about Prime’s specialty and total drug management capabilities, contributing to innovation in these capabilities and driving client growth.

Dr. Leach joined Prime with more than 20 years of experience as a clinician, researcher and health care leader. For the past 10 years, Dr. Leach has been a hematologist and medical oncologist with Minnesota Oncology, where he continues to see patients. Active in clinical research, Dr. Leach has held numerous national leadership positions in research, including service on the National Cancer Institute Thoracic Malignancy Steering Committee and several roles with the Eastern Cooperative Oncology Group, which was one of the first publicly funded cooperative groups to perform multi-center clinical trials for cancer research.

Prior to joining Minnesota Oncology, Dr. Leach practiced oncology and held physician leadership roles at several Minnesota hospitals, including the Virginia Piper Cancer Institute at Abbott Northwestern Hospital in Minneapolis, Methodist Hospital in St. Louis Park and St. Francis Regional Medical Center in Shakopee.

Dr. Leach earned a bachelor’s degree in biology from St. Olaf College in Northfield, Minnesota, and his Doctor of Medicine degree from the University of Minnesota. He trained in internal medicine and medical oncology at the University of Oklahoma, Oklahoma City, Oklahoma.

Midwest Lung Cancer Patient Summit Presentation:

Clinical Trials: Promising Treatments Being Developed TodayJoseph Leach, MD, Senior Vice President and Chief Medical Officer, Prime Therapeutics LLC 

Women & Lung Cancer: From Sexual Dysfunction to Stigma

Narjust Duma:

Dr. Narjust Duma is a faculty member in the Division of Hematology, Medical Oncology and Palliative Care. She is a medical oncologist with clinical and research focus on thoracic malignancies. She has been recognized for her work with numerous awards, including the Mayo Brothers Distinguished Fellowship Award, considered the highest trainee honor in the Mayo Clinic School of Graduate Medical Education; the Merit Award/ASCO Employees Endowed Merit Award, American Society of Clinical Oncology; and the Next-Generation Innovators Award, HemOnc Today -Healio, Scholar in Training Award, 11th American Association of Cancer Research (AACR) conference on the science of cancer health disparities in racial/ethnic minorities and the medically underserved. Dr. Duma is a member of the National Hispanic Medical Association, the International Association for the study of the Lung Cancer (IASLC), the American Society of Clinical Oncology, Oncology Training Programs Committee, and the American Society of Clinical Oncology, Diversity and Inclusivity Task force.

Midwest Lung Cancer Patient Summit Presentation:

Women & Lung Cancer: From Sexual Dysfunction to Stigma – Narjust Duma, MD, UW Carbone Cancer Center

Parenting Through Cancer

Sarah Manes:

On staff at Angel Foundation since 2011, Sarah is the Vice President of Patient & Family Programs and Strategic Partnerships. Sarah has a Master’s degree in Child and Family Development and is a Certified Child Life Specialist. She brings more than 15 years of experience working in the nonprofit and medical fields, particularly focusing on cancer wellness, end-of-life, program development and community outreach. She lives in Minneapolis with her wife, son and dog and enjoys bike rides, cooking and laughing!

Midwest Lung Cancer Patient Summit Presentation:

Parenting Through Cancer– Sarah Manes, CCLS, Vice President of Programs and Community Relations, Angel Foundation

Grief and Self-Care in 2020

Melissa Mork, PhD:

Dr. Melissa Mork is Professor and Chair of the Department of Psychology, Criminal Justice and Law Enforcement at the University of Northwestern, St. Paul. She is the author of the book, “Navigating Grief with Humor” and the upcoming book, “Self-Care: A mildly interesting, reasonably priced, fairly practical guide to caring for you.” She is a Certified Humor Professional and a Grief Coach. Her greatest accomplishment, to date, was when Jimmy Fallon read her tweet on Hashtags.

Midwest Lung Cancer Patient Summit Presentation:

Grief and Self-Care in 2020 – Melissa Mork, PhD

Mutations and Biomarkers

Manish Patel, OD:

Dr. Patel is the Associate Professor of Medicine and a medical oncologist at the University of Minnesota specializing in the care of patients with lung cancer. He is engaged in lung cancer research trying to develop novel therapies in his laboratory as well as in early phase clinical trials to be applied to lung cancer patients.

 

 

 

 

 

 

Aaron Mansfield, MD:

Dr. Mansfield is a medical oncologist with a focus on thoracic malignancies and early therapeutics. He has played a significant role in clinical trials leading to FDA approval of agents in lung cancer including atezolizumab for small cell lung cancer and pralsetinib for RET-fusion non-small cell lung cancer. His laboratory runs many translational projects to discover and validate biomarkers in thoracic malignancies.

 

 

 

 

 

Naomi Fujioka, MD:

Dr. Fujioka is a medical oncologist at the University of Minnesota specializing in thoracic and head/neck malignancies. She is involved in clinical trials. Her research interest is in food-based chemoprevention of tobacco-related lung cancer.

 

Midwest Lung Cancer Patient Summit Presentation:

Mutations and Biomarkers – Manish Patel, OD, University of Minnesota, Aaron Mansfield, MD, Mayo Clinic and Naomi Fujioka, MD, University of Minnesota

The outcomes of patients with lung cancer have improved largely on the strength of research that has identified biomarkers (DNA mutations or proteins) that are unique to individual patients that can allow us to target therapy more specifically. We will discuss the ramifications of these biomarkers and how they are currently used to decide upon treatments for lung cancer.

Virtual Laughter Yoga

Mary Margaret Anderson:

Mary has spent over 35 years in spandex teaching yoga, mindfulness, group fitness and training instructors in every kind of exercise & wellness adventure. Her passions as a teacher are LOVE, fun, laughter, great music, copious amounts of sweat & kind energy, and getting the uninterested interested. She has trained extensively in Mindfulness Based Stress Reduction, yoga, meditation, Spin, cardio dance, laughter yoga, Body Pump, and a boring braggy list of things you never heard of. Catch her reading, recycling, biking, running, nordic skiing, drinking coffee and laughing with her husband, Skip. She recently sold her Hot Yoga studio, one of the first HOT yoga studios in Minnesota, surfs the couch on a daily basis and loves chocolate, veggies, butter, being outside and her family—(including her super-hot husband, 4 kids and 5 grand kids).

Midwest Lung Cancer Patient Summit Presentation:

Virtual Laughter YogaMary Anderson, MN Yoga Studios

Join Mary for a quick 20-minute injection of life, love and happiness into your soul. We will laugh, move a bit, breath and love each other. It’s been proven that YOU are easier to be around and heal faster when you are HAPPY! Let’s give it a try!

A Lawyer on Your Cancer Care Team

Lindy Yokanovich:

Lindy is the founder and executive director of Cancer Legal Care, a non-profit organization providing free legal care to Minnesotans affected by cancer. Compelled to bring Cancer Legal Care to life after witnessing first-hand the many legal questions and difficulties her own loved ones faced after being diagnosed with cancer, Lindy counts her work with Cancer Legal Care as the most profound and gratifying of her legal career. For her work in founding Cancer Legal Care, Lindy has been honored by the Women’s Health Leadership Trust, Minnesota Lawyer magazine, Angel Foundation, and the judges of Minnesota’s 10th Judicial District.

Lindy is an adjunct faculty member of the University of Minnesota School of Law, and serves on the board of directors of GiveMN , the steering committee of the Health Care Legal Partnership, and is past steering committee member of the Minnesota Cancer Alliance.

A frequent author and speaker on the intersection of cancer and law, Lindy received her BA from the University of California, Irvine, and her Juris Doctorate from the University of Pacific, McGeorge School of Law.

Midwest Lung Cancer Patient Summit Presentation:

A Lawyer on Your Cancer Care Team – Lindy Yokanovich, ESQ, Founder and Executive Director of Cancer Legal Care